Glossary

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Re-identification risk(also: De-anonymization risk, Data re-identification)

The possibility that an individual can be identified from supposedly anonymized data by combining multiple data points or matching against external datasets. People with disabilities face heightened re-identification risk because uncommon combinations of attributes — rare…

Reflexivity(also: Researcher Reflexivity)

A research practice in which scholars continuously examine how their own identities, positions, assumptions, disciplinary training, and power relationships shape the research they conduct — the questions they ask, the methods they choose, the participants they recruit, and the…

Representational harm(also: Representational bias)

A category of harm caused by AI systems that perpetuate or amplify negative stereotypes, demeaning portrayals, or erasure of particular social groups, distinct from allocative harms that deny resources or opportunities. In disability contexts, representational harms occur when…

Research Ethics(also: Ethics in Research)

The principles and practices governing the responsible conduct of research, including informed consent, minimizing harm, protecting privacy, and ensuring equitable treatment of participants. In disability research, ethics considerations include power dynamics between researchers…

Research Fatigue(also: Participant Fatigue, Community Research Fatigue)

The exhaustion or disengagement experienced by individuals or communities that are repeatedly recruited for research studies, particularly when they see little benefit or change resulting from their participation. In disability communities, research fatigue is a growing concern…

Research reciprocity(also: Participatory reciprocity)

The principle that research participation should be a mutually beneficial exchange in which participants gain value — such as social connection, learning opportunities, a sense of contributing to knowledge, or direct improvements to their lives — rather than being treated solely…

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